So at 37 weeks pregnant I noticed I was feeling dizzier and dizzier. I wasn't to worried at first I had already had weeks like this before but then always went back to a kind of baseline dizziness.
But as the days went by the dizziness became intolerable and I was getting very worried I started going to the doctors again but they said whilst pregnant they could do nothing for me.
I had my baby boy at home as planned but I had vertigo for the whole labour and it was one of the worst things Ive ever gone through.
I was so relieved when it was all over and my baby boy was here but the vertigo was awful afterwards too and I struggled to even do the basic of tasks taking care of him.
The day after the birth I noticed when I walked I felt very strange very off balance and like I was walking on a tilting surface and a severe dragging feeling in my head which was constant.
I was so thankful for my Mom and husband as I would not of got through those first few weeks without them.
I went back to the doctors weekly now and begged for another medication to try in the end they relented and offered me another drug pitzotifen which I added to the amitriptyline I was already taking.
It brings me up to the point I am at now and Ive been on the pitzotifen for 10 days at the lowest dose but have noticed some slight improvements as to where I can drive the car again and do stuff around the house.
I see a neurologist at the end of the month and Im hoping for more answers then. If I'm not much improved after the New year I've decided I will go and see Dr Sutherian who is a specialist in balance disorders and takes a particular interest in MAV. I wish there was more knowledge in balance disorders especially GPs who treat you like your making it up or just arent interested just send you off with pills that don't even work.
My family try to understand my issues but it must be hard living with someone with chronic illness I cry a lot sometimes it helps to let it out now and again. Its a hard illness to live with you never feel comfortable in your own skin even whilst lying down I feel the sensations and even have dizzy dreams where I am spinning so that wakes me up. Its tough as I feel like this time I've gone back to the beginning and trying to recover again all I can do is sit tight take the medication and pray they work so I can go back to living again! At 26 years old I don't want this to be my future constantly dizzy and worried. anxiety plays a role in this for most people over the years I've struggled with panic attacks I struggle with crowds, supermarkets and even doing the school run brings feelings of anxiety and its no way to live I just want my life back.
We all love you Don, and until I can figure out how to coax the cause of the balance disorder to manifest itself into a living being form (so we can chase it around the neighbourhood (& kill it, slowly and painfully may I add)) we shall sit tight with you! I got mine at 21 and am going on 26 in Aug 2013. I dread to think about the longevity of this illness. It's soul destroying. xxxxx
ReplyDeleteThanks so much Tricia love you lots to! X
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