Tuesday, 20 November 2012

Shopping,School runs & compensation!

I visited My husbands Nan this morning I have not seen her in a long time and she met my new son for the first time.
This is the first time I've been able to visit a family member since he has been born I still feel quite dizzy but I'm at a level I can cope with it again and go out a bit even though I still feel uncomfortable most of the time. I managed the school run although I do walk as though Im attached to a pole, people coming up to make conversation is always a fun moment as half the time its the last thing I want to do :) although it appears unsociable and I am far from that its something you cant help at times.
Sometimes when I go shopping I dont even know what Im picking up and putting in the trolley I cant be fussy I grab the first thing on the shelves many times Ive got home and picked up oranges instead of onions or something lol I hate standing at the till to queue I feel trapped by the person in front and the one behind and somehow I always seem to pick the queue where something goes wrong like the woman infront not being able to find her card or something by that point Im usually hyperventilating with beads of sweat running down my forehead! I try to do my shopping online these days !!!

With any vestibular injury there is a compensation process I was told that with migraine you get attacks it can attack your balance organs which then leave you with the balance problems and dizziness. You should begin to compensate at this point but usually you have another attack before your body gets chance so you start the whole long process again. This is where medication comes in which is used to help prevent future attacks so true compensation can take place.
Its a hard concept to get my head around at times and accept the diagnosis but I know now that this is what I have and thats half the battle. With my episodes I can get flashing auras and a pins and needles in my face and numbness. Occasionally I get a sore scalp so it feels very sensitive to touch I do not know if this is part of the migraine process but I should think it is.
I dont like the way doctors and even specialists associate migraine with pain it can come in many forms and affect people in different ways I prefer to look at it as a neurological disorder as when you tell people you have migraine they just tend to think its a headache which is far from it in my case at least.

I am hoping this blog gets out to people who may have not even heard of MAV and educates them but one thing this illness has taught me is compassion for others who may have an invisible illness so for that Im grateful.


3 comments:

  1. Hi Donna. I'm really enjoying your blog. I hate the way migraine has been downgraded. If you tell someone you have migraine they always think it's just a 'bad headache' - it's SO much more. I really feel for you and hope it starts to improve soon! Les

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  2. It's scary being in busy stores and crowds, i just want to get in and get out again and feeling very dizzy whilst away from home is awful, i think then the anxiety can kick in and add to the symptoms. I know what you mean about conversations with people too, it's like it's hard to focus on them and to balance, it sucks because you do feel grumpy and unsocial.
    Have you found sunglasses help when under flourescent lights?
    This blog is great (though not great that you have had to write it in the first place) i wish more people were aware of this horrible condition.

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  3. Hi Dee
    I have used sunglasses in the past but sometimes they make me feel worse as I rely on my eyes for balance so it takes away some of my visual clues.
    But yes we do go unsocial but its not our fault its the condition sorry you have this too X

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